Tiffany Galvin

Sidewalk chalk

Wednesday 27th May This appeared on the sidewalk along my route today. Lilo and Stitch was her favorite movie! Share

3 weeks down

Saturday 23rd May I'm in the home stretch! I'm incredibly grateful to all my donors! I started this journey to challenge myself, raise money for a good cause and tell Memphis' story. I think that a little girl that went through so much deserves to be remembered. She'd have been ten. Share

First week done

Friday 8th May A quarter of the month and I'm about a quarter of the way on my goal! Another gorgeous day! I just had to get out for a run. Only made it halfway today though. I'm starting to really enjoy running. It's fun to just clear my head and think. I've been thinking a lot about Memphis this month. Today I got to wondering what he first word would have been Share

Second run

Sunday 3rd May My second run is in the books. I got to tell Memphis' story today. It feels good to keep her memory alive Share

First run

Saturday 2nd May What a glorious day for a run! Share

PCH

Friday 24th Apr With one week left until the start of this journey, I thought I'd take a few moments to explain just what PCH is. According to https://rarediseases.org/rare-diseases/pontocerebellar-hypoplasia/ Memphis suffered from a very rare disorder. Pontocerebellar hypoplasias (PCH) are a group of very rare, inherited conditions in which two parts of the brain, the pons and the cerebellum do not develop fully before birth or begin to shrink (atrophy) soon afterward. As a result, children with PCH often have a small head size (microcephaly), problems with vision (optic nerve atrophy), abnormal muscle tone (dystonia), difficulty coordinating movements (ataxia) and other neuromuscular issues. This means that she had very little muscle control, was probably blind and looked like a pixie. Her shortened tendons pulled on her joints and caused discomfort and, often, pain. She had actually been scheduled for hip reconstruction surgery in February of 2022. Her passing December 21, 2021 prevented her from having to go through that. It's only with the care of the Winnipeg children's hospital that we were able to bring her as much joy as we did. Share

Two weeks

Thursday 16th Apr Only two more weeks until I start this challenge in honour of Memphis Galvin. She was a delightful little girl. Her Meme and Pepe loved her dearly. She was diagnosed with PCH at the age of 6 months after her first grand mal seizure. In and out of hospitals after that, she has 37 doctors at one point. I'm hoping to raise money so that future little girls like her will hopefully have a chance at a future! Share

My reason

Tuesday 24th Mar This is Memphis. She was born with a condition called PCH. Her maximum lifespan was 8 years old. Unfortunately, in 2021, at the age of 6 years old, she lost her battle, and passed away. We donated her brain to science. Research and study of her brain increased understanding of cerebral conditions and contributed to future children around the world. Share